BEYONDXLH

BEYOND‌XLH will enroll participants with XLH and other hypophosphatemic disorders so we can learn more about this disorder. It will gather information on how the disorder affects your daily life. Information provided will expand the understanding of XLH. The information may also help improve patient care across multiple conditions, and will guide the development of new treatments. You do not have to be on any particular medicine or therapy in order to participate.