레어노트 - 암·희귀질환 정보

● What is "Rarenote"?

1. Cancer and Rare Disease Information

- Global News: Receive real-time news from major domestic and international media outlets on cancer and rare diseases. International articles are provided in Korean for easier reading.

- Clinical Trial Status: Real-time updates on domestic and international cancer and rare disease clinical trials allow you to check clinical trial information and the progress of new drug development. AI-assisted summaries provide easy-to-understand guidance on difficult-to-understand clinical trial information. (Source: International - ClinicalTrials.gov, Domestic - Drug Safety Korea)

- Disease Information: Provides essential information for those newly diagnosed with cancer or rare diseases. We gather basic knowledge from trusted organizations such as the Korea Disease Control and Prevention Agency Helpline, StatPearls, and MedlinePlus.

- Patient Group Information: Check out and join patient groups with similar conditions. You can also contribute to raising awareness of rare diseases and cancer by participating in health surveys conducted jointly by Rarenote and patient groups. - News: Receive the latest information on disease-related events, campaigns, seminars, and more. Share this news on Rarenote to reach more patients.

1. Community

- Ask questions about symptoms, prescriptions, medications, and more from patients with the same condition or their guardians.

- Receive real-time notifications of new posts from patients with the same condition and their guardians, allowing you to quickly share information and experiences.

1. Medication Assistance Program

- This program provides partial reimbursement of medication costs for patients with specific conditions who have been recommended by their primary care physician, with support from the sponsor. Those who meet the eligibility criteria are eligible to apply.

- Easily apply for and receive reimbursement through the Rarenote app.

1. Medication Management Program

- This program supports patients using the sponsor's medications to manage their medication more systematically.

- Medication reminders, deferrals, and medication completion records allow you to administer or take medication according to a set schedule, effectively managing your condition and pain.

1. Recommended welfare programs tailored to your needs

- If you need financial or living support to use the sponsor's medication, you can find the right welfare program for you by entering simple information such as income, assets, and residential area.

● Why does Rarenote do this?

Rarenote works to solve various problems faced by cancer and rare disease patients. Ultimately, our goal is to expand treatment opportunities for these patients.

Rarenote not only addresses the "information gap" for cancer and rare disease patients, but also collaborates with patient groups, medical professionals, and pharmaceutical companies to build a data registry, contributing to expanding treatment opportunities for these patients.

● RareNote Related Articles:

RareNote Expands Business to Rare Cancers: https://economist.co.kr/article/view/ecn202502230016

Humanscape Partners with Hana Bank and the Korea Rare and Incurable Disease Association to Build Rare Disease Patient Health Data: http://www.hitnews.co.kr/news/articleView.html?idxno=50922

● Inquiries

Please email [email protected]. The RareNote team welcomes suggestions and feedback from medical professionals, pharmaceutical companies, patient groups, and patients/guardians.